Special Interest Groups
Breast cancer advocacy is about making a difference by actively supporting or defending the cause either personally or publicly. In this section, you will find opportunities and possibilities for what you can do as a concerned family member, a survivor, a friend, or a citizen to join others in being a voice on behalf of those affected by breast cancer.
Although breast cancer continues to affect patients and families, there is a lot we can do to lower our risk of breast cancer or breast cancer recurrence. A large percentage of cancer cases have environmental causes, and are largely under our control. We can choose to make lifestyle changes and lower our risks for breast cancer by ensuring we eat a nutritious diet.
Caregivers give emotional support and inspiration to breast cancer patients. Most often the caregivers are unpaid loved ones and may be a spouse, partner, family member, or a close friend. Here you will find information on how you can support a cancer patient as a caregiver even if you are a family member or friend.
A clinical trial (or clinical study) is a research program that tests how well new medical approaches work for people. They test new methods of screening, prevention, diagnosis, and/or treatment of a disease. In this section, you will find more information on clinical trials and experiences of breast cancer patients who opted to participate in clinical trials. Information on events in your area may also be available.
Nurses, doctors, patient navigators and technicians are among the many genres of healthcare professionals who dedicate their professional lives to guiding and overseeing patient care. This group is for those working in the field of healthcare, wishing to share experiences or ask other healthcare professionals questions regarding their experiences in the healthcare field.
Breast cancer is a disease where cells in the breast become abnormal and multiply without control to form a tumor. However, hereditary breast cancer is caused by a mutant gene that is passed from the parent to the child in about 5 to 10 percent of all breast cancers. In this section, you will find a wealth of information on experiences of women with hereditary breast cancer, information on educational events and conferences in your area, and expert opinions on hereditary breast cancer.
Inflammatory breast cancer is a rare and aggressive type of breast cancer, affecting about 1 to 5 percent of all breast cancer patients. The cancer develops rapidly with reddening and swelling of the breast accompanied by tenderness. Aggressive treatment is necessary to treat this cancer. This section of the website offers insight into inflammatory breast cancer articles, updates, events, and experiences of patients.
Lymphedema is swelling that generally occurs in one of your arms or legs, though occasionally both arms or legs may be swollen. Lymphedema is caused by a blockage in your lymphatic system, which prevents lymph fluid from draining well. As the fluid builds up, the swelling increases. Lymphedema is commonly caused by the removal of or damage to lymph nodes as a result of cancer surgery or treatment. While there is no cure for lymphedema, symptoms can be controlled through various actions, such as exercises, massage and compressions.
Male breast cancer is a rare condition that accounts for only about 1 percent of all breast cancers. Most cases of male breast cancer are detected between the ages of 60 and 70 in men, although it can develop at any age. Male breast cancer can be caused by environmental influences and genetic factors.This section of the website will provide insights into support groups for men with breast cancer, treatment experiences, events, and education about male breast cancer
Women diagnosed with metastatic breast cancer are not alone in their fight against the disease. This website offers information on support groups, educational events, and stories of other breast cancer survivors. The blog provides insights into experiences of women and their families affected by the breast cancer. If you or some one you know is diagnosed with metastatic breast cancer, this section of the website is a great resource for you to find information.
If you are newly diagnosed with breast cancer, this section is your go-to resource for information and links to other websites with tips to better manage your diagnosis. Browsing through this section you will feel at ease because you are taking your first step to deal with the diagnosis. Now is the time to think about options and get a second opinion. Do not feel rushed into making important decisions concerning your health and diagnosis. You might be overwhelmed but the uncertainty can be relieved with information you can get here regarding support groups, experiences of other patients, and other motivational articles.
Tax-exempt organizations that exist for the purpose of serving the public interest, be it charitable, educational, or scientific. Nonprofit organizations fill many public needs, working on behalf of the public on issues that might otherwise go unaddressed. While these organizations work on behalf of the public’s many interests, they often rely on tax deductible public donations in order to operate. From the small, locally-focused nonprofit organization working to support and provide services to residents of a local community, to the big national nonprofit organizations working on behalf of nationwide interest groups, we depend upon nonprofit organizations to advocate for us and our needs.
A Previvor is a person who does not have cancer but possesses a genetic predisposition to develop the disease. They are also called pre-survivors. Previvors get knowledge about their predisposition to cancer through family history or by knowing that they possess some of the genes that are potential cancer indicators. Most previvors are at high risk for ovarian and breast cancers. This section on previvors is your resource to a fund of knowledge regarding support groups, information on genetic testing, preventative health care, and stories and experiences from other previvors. If you are a previvor, you will be empowered to better deal with your predisposition to cancer when you use these useful resources.
At the point of cancer diagnosis, your journey to a Survivor Thriver begins. This is a group of people diagnosed with any form of cancer. It is about the person’s journey from a diagnosis through treatment, which is a long road of strength, determination, and courage. With the resources and information in this section, you will find others like you who are thriving survivors.
About 10-20% of breast cancers test negative for two types of hormone receptors (estrogen and progesterone receptors) and HER-2 receptors, thus making them triple-negative breast cancer. This type of cancer responds to chemotherapy although it is aggressive and likely to recur. It can be upsetting and depressing to know that your diagnosis of breast cancer is triple-negative. Here, in this section on Triple-Negative Breast Cancer, you will find a wealth of information on useful resources and links to other websites that provide detailed descriptions of the cancer and how to deal with it, what to expect, etc. The blog also lists articles by bloggers and other breast cancer survivors that will be a source of inspiration to you. You are not alone in this fight against the disease, and you must tap into valuable information that is provided here for you and others like you.
“Young” women breast cancer usually refers to women below age 45 who develop breast cancer, and this is less common with only about 5 percent of all breast cancer cases. Women diagnosed at a young age are more likely to have a mutated BRCA1 or BRCA2 gene. If you are a young woman diagnosed with breast cancer or you know a family member, friend or loved one who is young and diagnosed with breast cancer, this section of the website will bring information within your reach that is useful to you to cope with the diagnosis. You will find bloggers who have contributed their personal stories and experiences in dealing with breast cancer at a young age. In this section, you will find educational information and community events listed.